@colleenyoung Thanks for your response. My Neurologist DID send in a referral for me. He is the one who sent it to Rochester because he said they have the best Neurology department for someone with my complex multi-system diagnoses. That is why I was shocked when I was denied. I also detailed out my entire 5 year history with all of my debilitating symptoms on the patient link that was sent to me from Rochester. I shouldn't have gotten my hopes up, but it was hard not too after losing my lifes work and suffering bedridden with this for 5 years. Living in a bed for the rest of my life is extremely devastating news. It will take a while for me to process this. I hope someone can suggest a way to get help. I need neurological testing that is not available in Kansas. Thanks for your time.