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Clicks and pops in and around shoulder anyone else ?
Polymyalgia Rheumatica (PMR) | Last Active: Jul 23 8:18am | Replies (21)Comment receiving replies
The jaw pain is exactly as you describe...especially painful in the morning so if I try to eat a bagel before taking my prednisone I power through the jaw pain. It's only on one side...no tooth pain or mouth pain just the one jaw hinge. By mid day it improves. They did the artery biopsy on the opposite side. They said some Dr perform the artery biopsy on both sides to be as thorough as possible, but they felt since all clear one the side they performed the biopsy on...they are not planning to do the side where I have the jaw pain. I'm not on medicare yet (still on the fence about retiring as I try to wrap my head around how PMR will truly impact me once it's fully treated and stable), but my military retiree insurance has been super throughout all of the variations (total of 11) of MRIs CT scans and ultrasounds over the past 8 weeks to reach this PMR diagnosis...Hopefully if my rheumatologist recommends Kevzara, etc. they will cover it with little if any pushback. And so the journey begins...
Replies to "The jaw pain is exactly as you describe...especially painful in the morning so if I try..."
@mwhite6262 I am having jaw pain after starting-back on 20mg. of prednisone. Didn’t have it before. I had a lot of jaw pain the second time I had Covid. Have never had GCA. I am thinking my jaw pain is a response both to an infectious disease and starting- on prednisone. I had TMJ years ago, but this doesn’t feel the same. Couldn’t open my mouth, then. Had to use a straw to “eat” anything….
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@mwhite6262 I would do my best to get off the pred as soon as your body let's you. It works really well, but it can have some bad side effects.
Very bad muscle weakness, even muscle will dissapear. Other things too. I hope your rheumatologist will figure it out. But the 40mg should help it if it's gca. If you have trouble with your eyes, you need to get to an er, as gca can make you lose your vision.