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ronludington avatar

Aches and pains , what would you do ?

Polymyalgia Rheumatica (PMR) | Last Active: Jan 15 5:34pm | Replies (25)

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Profile picture for Mike @dadcue

@ronludington

Seven years of PMR is a long time. I assume you were on prednisone the entire time. Even with Kevzara, it might take you a while to taper off prednisone as you will likely have some secondary adrenal insufficiency.

Just be aware that symptoms of secondary adrenal insufficiency can mimic PMR. I think when my cortisol level was too low after I reached 5 mg of Prednisone, it was difficult for my body to regulate inflammation. Kevzara should help to control the inflammation. However, as the prednisone dosage is reduced, the body needs time to resume its own adequate cortisol production.

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Replies to "@ronludington Seven years of PMR is a long time. I assume you were on prednisone the..."

@dadcue I was on and off a few times, I would reduce to 0 and then a few months later the pmr would return. The first taper 60 to 0 went pretty well. I had roughly 5 months of being free before it came back.
But I agree, I may some adrenal insufficiency, but they don't want to check fir that.