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Long COVID providers/specialists?
Post-COVID Recovery & COVID-19 | Last Active: Feb 1 1:11pm | Replies (79)Comment receiving replies
@ksblonde, getting the denial letter is a gut punch. Mayo Clinic receives more requests, than spots available. There are a couple things you can try, however. First, if you submitted a self-referral, you might ask your neurologist who suggested that you need a multidisciplinary center of excellence to submit a physician referral on your behalf. Since you are willing to travel, you could apply at a different Mayo Clinic location. Mayo Clinic in Rochester, MN and Jacksonville, FL both treat long Covid. Appointment applications and intake are through General Internal Medicine.
I moved your post to this discussion where members share other options for care:
- Long COVID providers/specialists?https://connect.mayoclinic.org/discussion/long-covid-providersspecialists/
Replies to "@ksblonde, getting the denial letter is a gut punch. Mayo Clinic receives more requests, than spots..."
@colleenyoung I am in need of neurological testing that is not available in Kansas. Can you add this to Neurological options for care discussion? Thank you.
How do I get autonomic testing not available in Kansas, if the best neurological Multi-specialty clinic like Mayo denies me help? I am now bedridden most of the time. I need specialized testing. The denial makes no sense and would not be a long covid evaluation. It would be neurological. There has to be somewhere to get help. I cannot imagine spending the rest of my life in bed because, at the stroke of a pen, a doctor at Mayo, who has never met me, or talked to me, or talked to my neurologist, decided my life is not worth it. Denied...
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@colleenyoung Thanks for your response. My Neurologist DID send in a referral for me. He is the one who sent it to Rochester because he said they have the best Neurology department for someone with my complex multi-system diagnoses. That is why I was shocked when I was denied. I also detailed out my entire 5 year history with all of my debilitating symptoms on the patient link that was sent to me from Rochester. I shouldn't have gotten my hopes up, but it was hard not too after losing my lifes work and suffering bedridden with this for 5 years. Living in a bed for the rest of my life is extremely devastating news. It will take a while for me to process this. I hope someone can suggest a way to get help. I need neurological testing that is not available in Kansas. Thanks for your time.