Connect
← Return to Help with Chronic Fatigue Syndrome
Discussion
Help with Chronic Fatigue Syndrome
Just Want to Talk | Last Active: 1 day ago | Replies (68)Comment receiving replies
@susanmaple
I had numbness in my toes and pain in my ankles and hands. At the time, I thought the numbness was from my lower back due to disc and compression problem. Learning more about what SFN was I
figured that was probably the real cause (small tissue fiber biopsy was positive)
The folate 800mcg and B12 500mcg was due to a high homocysteine level— I had a folate deficiency. It was my Neurologist who did a battery of autoimmune blood levels to see if there was an underlying cause of the chronic fatigue. Was very helpful for his help since my PCP wasn’t.
Ps. Gabapentin knocked me out on the lowest dose and Lyrica gave me headaches.
Good luck and keep asking questions
Replies to "@susanmaple I had numbness in my toes and pain in my ankles and hands. At the..."
Connect
@madnar0019
Thank you for your response! Sometimes there's so much going on, you just go from one thing to another, right? I've had psoriatic arthritis since the early 2000s and have been on Methotrexate since then. It was very difficult getting diagnosed as I showed no signs of psoriasis until 2004. In 2024, I had iron deficiency anemia and it took almost a year to find the cause, which was a hiatal hernia (I had no symptoms of the hh, even though more than half of my stomach was sitting on top of the diaphram!). After having surgery last June, I was so much better (with improvements in my vitals) that I noticed how bad the SNF was. The Nortriptyline and acupuncture have helped with the pain, but the numbness is worse in my hands and face. Since the 1990s, I have had burning mouth syndrome and now I'm reading that might be connected to the SFN. I have had respitatory problems after 3 Covid vaccines. By the way, I already take the B12 but will check with my rheumy about the dosage. Thank you for your help! Good luck to you too❣️