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Profile picture for mochat @mochat

My hair is falling out in handfuls.
I have had the BCG, but didn’t work for me.
Now have had 6 weekly gemdoc, and about to have my 4th monthly gemdoc with 1 more to go and then BlueLight cystoscopy.
Last BlueLight cystocopy bladder was totally clear.
I hate the gemdoc experience but am coping well except for fatigue and the servere hair loss.

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Replies to "My hair is falling out in handfuls. I have had the BCG, but didn’t work for..."

@mochat We each respond differently to gemdoce. Sometimes I (not really) wish that my hair had fallen out because when I get too tired to participate in something, etc., and explain that it is from chemo, some people look at me like I am making something up. I finally realized that it is because I still have my hair! I am glad that I still have it, but it can get frustrating. Chemo brain is my main problem in all of this.