← Return to Clicks and pops in and around shoulder anyone else ?

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Profile picture for mwhite6262 @mwhite6262

7 years!? Wowsa. On the GCA...I do not bad headaches, but I have been having the jaw pain for sure. They surgically removed part of my artery in the left temple for biopsy. (10 stitches to be removed next week.) They did one side only. Said all was clear. I continue to mention the jaw pain. Most of the pain that returned after dropping to 40mg from 60mg is in my shoulders and arms. (I feel an increase of pain in my lower back/hips as well.) Hopefully it will level out. I do not have a follow up with my doctor for a couple more weeks so I guess depending on how I feel at that time will determine if my Neurologist will decide to adjust my dosage. She's managing this until my Rheumatologist appointment, which isn't until mid March. I've read and been told by her about the non prednisone option as a potential solution my rheumatologist may recommend, which is probably the kevzara you mentioned.

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Replies to "7 years!? Wowsa. On the GCA...I do not bad headaches, but I have been having the..."

@mwhite6262 yes, the jaw pain is in the joint, not like a toothache or root canal, but back in the hinge. If I tried to eat something thick, like a sub. Or hard like tough steak, that joint would hurt.
The shoulders, arms and hips does sound like pmr though. You really need the rheumatologist.
Kevzara or actemara (Same stuff really) is expensive though. The rheumatologist usually can find a way to get it.
Full price is like 4k a month. I'm lucky that being on medicare. Max is 2100 a year, but I get it through a specialty pharmacy with novant, and novant has a program. That pays for it. So I get it for free. Hopfully they can do something similar for you.