Connect
← Return to What age were you diagnosed?
Discussion
Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (23)
Comment receiving replies
@ndep
I agree. We must be proactive with regards to our health. I have read about so many people in this forum who have either been misdiagnosed or undiagnosed and, consequently, have suffered for years with PMR because they rely on doctors who are not educated sufficiently about PMR. My rheumatologist now understands that we have to go by my symptoms rather than my lab results in treating my PMR. Btw, when you relapsed, how were your symptoms? Were they as painful/severe as the first time or not? And how long did it take you to taper off completely from prednisone the first time? Thank you so much for your input and I sincerely hope we all get better soon.
Replies to "@ndep I agree. We must be proactive with regards to our health. I have read about..."
Connect
@e441300 The first time when the doctors didn't know what I had my rheumatologist prescribed me quickly prednisone so the symptoms did not get as severe as now. This time I really WANTED to get diagnosed so the rheumatologist didn't prescribe prednisone before my appointment for a PET scan. Meanwhile the pain got worse and worse to a point I couldn't move when waking up. Very painful fingers and wrists during the night so I couldn't sleep for weeks.
First flare took me 4 months to taper from 15 to 4 mg. But the fifth month I had to take 4 mg I stopped taking it (did not know it was a bad thing to do) Pain in shoulders and stiff muscles in my legs remained for about 3 years and then finally disappeared.