@kennyo
12 out of 14 samples is very high.

I am wondering what’s going on with your doctor that’s a PSMA PET scan is not being ordered. With such extensive cancer in the prostate, it is very possible your cancer has spread outside the prostate.

You don’t mention where your PSA is right now. If you’ve been on ADT and it’s undetectable, then a PET scan doesn’t make sense. If your PSA is above .5, you should have a PET scan right away. A center of excellence with almost definitely have you get one.

If your PSA is undetectable, you should have a CT scan and a bone scan to see if there is spread somewhere else. These are all paid for my insurance. These tests are not as useful as a PSMA pet scan, but they are very good at finding prostate cancer That has spread. You may have a previous CT scan that they can compare it against.

With 11 out of 14 with 3+4 I cannot understand why a doctor would recommend active surveillance. That is just not the correct diagnosis.

You should consider seeing a center of excellence for a second opinion.