← Return to Eye problems with antibiotic treatment for MAC?

Discussion

Eye problems with antibiotic treatment for MAC?

MAC & Bronchiectasis | Last Active: Jul 17, 2019 | Replies (13)

Comment receiving replies
@colleenyoung

Joan, Several members have mentioned the importance of regular eye checks in the main MAC discussion. I highly recommend reading through it, getting to know the other members and soaking up the wealth of information here:

- (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS http://mayocl.in/2cwX36M

I'm also tagging @katemn @chinasmom @shiell @lindam272 and @jillnc to bring them into this discussion and to share their experiences with MAC, eye monitoring and potential issues. There was also mention of an app that some members use.

Joan, do you have pre-exiting eye problems?

Jump to this post


Replies to "Joan, Several members have mentioned the importance of regular eye checks in the main MAC discussion...."

My husband does. He has a major cataract in one eye and retinal problems in both. I am writing on behalf of him, trying to be his advocate. Thank you for your response.

Joan, I began the meds in December. I don't have any preexisting eye conditions although I know I will need cataract surgery at some point, just not there yet. I had a baseline eye exam with my opthalmologist and go every 6 weeks for a check up. My eye dr. suggested that I download an app on my phone to check my visual acuity and to check for color blindness weekly, which I do. There are a few apps so you can just pick one. I just typed in "visual acuity app" and a few came up. The Ethambutol can attack the optic nerve. That's why it's important to keep on top of it. Katherine, our mentor in this group, also mentioned that she realized when her colorblindness began when she had trouble reading the green street signs or highway signs and her husband was reading them just fine. That was her first indication that she was having a problem. If I remember correctly, now that she is off the meds, her vision is restored. Sometimes it comes back, sometimes it doesn't. That's why you have to be diligent. Eyes and hearing. I also see an audiologist every couple of months to have my hearing checked as the azithromycin can effect your hearing. Best to you and your husband. We are here if you need anything! Linda M.