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@kmm29 Good Morning! I have been treated for about 8 years I think. At the time I was diagnosed I had erosive lichen planus. My gums were so very red-I was under a great deal of stress at work and I think that was the reason my immune system went wonky!! Anyway, my dentist was on top of things-sent me to a specialist who is a dermatologist as well as a dentist and also to an another oral specialist. The only way to diagnosis lichen planus is with biopsy. I use Clobetasol gel on my gums 3x week, a tacrolimus solution swish also 3x week. For the most part my symptoms have been kept under control but stress and alcohol seem to get symptoms beginning again. It’s hard to restrict things I enjoy so I really try moderation. I have to say that I am “lucky” that my symptoms are generally pain free even though there are blisters etc.
I wish you the best and hope that your dr is helpful! What frightens me is that lichen planus can lead to oral cancer.
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@microgirl It frightens me to my core also! As for stress... I don't feel stressed although when this all started I was under a bit, I was dealing with a freakishly bad sciatica situation I had never had and using a lot of Motrin that was coming so close to a year long trip we had planned. Thank God for the chiropractor that took me in.
I was doing pretty well for 2-3 weeks after using my triamcinolone paste for the first time for 2 wks, no blisters have come back.
This week the gums are becoming red and inflamed again with occasional blood while brushing, so I am using the paste again.
I have not been back to the ENT since they did the buccal swab and prescribed this stuff, she suspects OLP as does my doctor. So I can see that happening soon as I will run out of the paste and then what, plus I want to discuss the biopsy as you said.
I really like the idea of a rinse. This stuff really ruins the taste of food though, but I suspect it all will. I'm in the beginning of my journey here and cheers to a stress free year!
Best of luck !