@mcwifey This sounds very difficult for you. My experience was a bit different and it took a long time to get the help I needed. The neurologist thought that I had an allergy to the #1 medication for my autoimmune disease. The gastroenterologist said that it was exocrine pancreatic insufficiency. He was correct but he was also a bit too big for himself. Once I changed GI doctors, I started to get better. So, what does my story have to do with your question? Well I think you need to get a GOOD gastroenterologists. If you’ve only been treated by your GP, it’s not adequate. You’re still sick. It’s time for a new start. Now, let’s let some members come in and tell you what worked for them