@g4c
What a journey. You have walked through more than what so many of us have not!!! Oh, my goodness. But by your attitude, I believe that and your family have moved you through all this with hope. GVHD. Yikes!! You have had what i read about. Some who post on here have had some of what you speak of. So many different challenges.
Meeting your donor!!! Mine was 26 from Europe. A perfect match. I think i can write again, you just reminded me. My first note when to him. I would love a 2nd to go.
Pancytopenia after my chemo from breast cancer is what took my blood numbers low and lead to my hospitalization for multiple transfusions. A year after I was nearly done with treatments I was thinking of some normal life. I had been a platelet donor for 25 years. I knew that none of the drugs i had taken so far would keep me from donating again. Except i month after i took my last Lynparza pill, my white cells and platelets continued to drop. I thought crap. I cannot donate with these numbers. Within a few months I got one of my drs to write a referral to the hematologist. And i got the right person on the phone to "hear" me and called the hematology department. My decreasing numbers concerned the dr too. One BMB later, and low-mid MDS was presented to me. I have Brca2, TP53 mutation and a 5Q deletion. The Dr
I will say said if theyhad6ofmewiththis diagnosis and we did nothing, 3 would be dead in 5 years. When i was approached a couple weeks before my transplant about being in a research study, I went for it. Phase 2. I think there were 30 or so of us. It was a pill taken daily to prevent GVHD. I have not had GVHD.
I will add when i had my 1st round of chemo, I got what was called a chemo rash. It did not come back after a week.
g4c- I hope you get far more good days in 2026 that are free of any blood or body challenges. A day at a time.