What is a Prostatectomy Like?

Posted by surveyr @surveyr, Jan 29, 2025

It is living hell
You wear a catheter for 7-10 days after surgery,
Then the fun begins.
You are now incontinent, and you must wear diapers, you actually leak pee,
It at times squirts out of you. You have constant urge to go meaning trips to bathroom every hour or less.
You have to deal with constant leaking, ED, potential UTIs.
Embarrassing and
Humiliating absolutely terrible time.
The care team will tell you that the
Incontinence last 9 months or more.
Remember prostrate cancer is slow growing
Surgeons will encourage surgery and your cancer will be gone but your life has changed forever because the incontinence is a daily challenge. Assuming you regain continence then you have to deal with ED.
Research as much as you can before making the decision to have prostatectomy. It is your body and your life afterwards.
But you potentially traded quality for quantity of life.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for paulbwatertownct @paulbwatertownct

Sobering progress….

Robotic operation on September 30th 2025, after being diagnosed with Gleason score of 9, and no real alternative choices besides operating. Could not spare nerves on one side, but I’m told they spared 90% on the other. Removed 9 lymph nodes, and the usual surrounding tissue…

So after 3+ months, still working on getting bladder under control, down to one man-pull-up a day, still leaking when standing, still uncomfortable and self conscious being out of the house for more than a few hours, ED is very depressing on so many levels.

I do remind myself that life before the operation was not great with daily and nightly urinary struggles.

On the positive side, no pain, blood work shows no signs of PSA, lymph node areas are no longer swollen, and hopefully I’ll be back to enduro motorcycle riding this spring…

Next blood test is February and my fingers are crossed. 🤞

I’m a 56 year old husband, father of three, one grandchild, and despite the complications, I fully believe in modern medicine.

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@paulbwatertownct Don't forget the good stuff.

- You're alive
- You made if through a pretty brutal surgery
- You have grandkids to enjoy. Better than me. My 2 girls have totally failed on that point.
- You're younger than many of us, so the future looks brighter than many

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