New DX with a lot of Confusion and Stress

I think we are all scared of taking meds, also of not taking meds. I too have “severe” OP numbers similar to yours. I did not receive any information about diet or exercise other than “resistance exercise” (been doing aerobics with weights for decades) and “eat calcium rich food, here is a list”. No PT until I asked since I need to have a referral to schedule. No specific osteoporosis physical therapist that I could find, but I did learn a lot from the one I saw. My CTX which I requested after reading about bone markers was at 52. Have no idea if that means anything; also had NTX which according to the lab paperwork was in normal range. Fosamax 8 months then reclast last July. I also am checking out the Y for weight bearing machines as the PT said that would possibly help. The doc scared me with the lecture about holding handrails, no shoveling, no bending or twisting, no golfing etc. made me think I should wrap up in bubble wrap and stay home! PT rolled her eyes a bit and said, after watching my so-called golf swing that I’d be fine to golf. She said strengthening core and keeping back flat; don’t bend over curved like a shrimp. OP was silent for me, no back issues like you. I did break my wrist in a car wreck couple years ago, EMT and ER doc said happens all the time (airbag injury) and the surgeon who fixed it said my bones looked good. He isn’t a DEXA machine though! I am 68, asked about HRT or BHRT and that was a hard no from gyne, mom had breast cancer.

You have to do your own research. The drugs fill the wholes but make your bones more brittle. The quality will go down. Research the drugs. Last month they took the black box warning off estrogen. The medical community has failed us. You have to be your own advocate and remember, doctors are trained to treat the symptoms not the cause. It is not their fault. It is all they know.

@jozer

Is there a reason why you have it been prescribed an anabolic like forteo, tymlos or evenity yet?

You have to do your own research. The drugs fill the wholes but make your bones more brittle. The quality will go down. Research the drugs. Last month they took the black box warning off estrogen. The medical community has failed us. You have to be your own advocate and remember, doctors are trained to treat the symptoms not the cause. It is not their fault. It is all they know.

2young4bones,
your own suggestion is the very best. Repeat the urine calcium. I'd stop D altogether in anticipation of the test.
You may have high free lambda because you are overworking your kidneys by tasking them to get rid of all that calcium'.
D enhances the absorption of calcium.
I'm not one of the resident experts that you have called up in your post. But I want everyone to at least try Forteo or Tymlos because I see them as the best medication available. They clear your system quickly so you aren't trapped by months of side effects. (Unless a person make the admirable, but mistaken, amazonian mistake of tolerating side effects)
They do raise calcium levels transiently. The temporary raise in calcium is an essential part of the mechanism by which these drugs work.
When you ask for the repeat 24 hour urine, you might also ask for a repeat D, as it can stay in your system for months, a parathyroid level. And P1NP to accompany the CTX.
Few PT are trained in the dangers of exercise for low bone density patients. And it differs for individuals depending upon where the lbd is. But if you have a trabecular structure successfully bearing the weight of life and then you remove a few of the struts, and then you raise the weight it has to bear cognizant that there will be bone muscle crosstalk, when you reach the peak weight that your muscles can bear (imagine weights held high overhead) your bones with all those missing struts might just collapse before hearing any crosstalk.
Your CTX is high--higher because it has to remove the damaged bone from the fracture.
Low bone density makes us think we need to stop the loss. The cells that CTX represent are attracted to damaged bone. Don't we need CTX to remove damaged bone. Wouldn't it be to our bone's advantage to increase the cells that replace the bone represented by P1NP.

@gravity3 I was diagnosed less than a month ago. Normally takes 4 months to see endo but I asked to be on the wait list and got in on Dec 29th. All my tests just came back and endo wants to use Evenity because of elevated calcium in my urine. Even he said it's really hard to get insurance to cover Tymlos which was my first choice when he presented options.

@dvargo so are you saying no treatment based on the risks after treatment? I thought some of the anabolic options built bone in different way and biphosonates only added to the outer layer. Anyone know that to be true or false?

@gently can you provide more info on P1NP? How is it tested and shouldn't it have been included with my other tests?

@dvargo that's why I'm interested in hrt during and after treatment. Frankly, in reading more posts, I'm getting scared to start Evenity as many ppl say they have bad side effects. My husband just battled head and neck cancer and I'm the majority bread winner so we can't afford me to be down and out for days each month. How is anyone supposed to make an informed decision when it seems like we aren't ever told the whole truth about treatments?