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What does the future look like for a stage 4 NET patient?
Neuroendocrine Tumors (NETs) | Last Active: Jan 26 7:40pm | Replies (37)Comment receiving replies
I'm personally searching for a "medical captain" that oversees, understands and provides guidance regarding how the medicine, active life style, nutrition work together with the goal being a plan that results in improved quality of life. (For instance what activities are best and how to monitor.ie strength training, cycling? walking (endurance or High intensity, frequency? Best Nutrition? Management of other health issues...I now have high sugar levels-perhaps the sandostatin? which now I take metformin. Not a fan of the pills and always seeking alternatives. Thank you you for listening. Greatly appreciated
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@jameshoch Finding that person would be nice. In my experience, that kind of coaching comes from a multidisciplinary team at comprehensive cancer center. You are your captain after engaging the resources available on your team. Study, learn, and develop a plan with them. There isn't a cookie cutter solution. What works for me might not work for you. Our bodies can react differently to the same cancer, in the same places, the same size, with the same treatment. It is great to have a plan, but initially, it might need some tweaking. You, and your multidisciplinary team, will make adjustments as your treatment progresses. Your thoughts?