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What is a Prostatectomy Like?

Prostate Cancer | Last Active: 4 days ago | Replies (121)

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Profile picture for paulbwatertownct @paulbwatertownct

Sobering progress….

Robotic operation on September 30th 2025, after being diagnosed with Gleason score of 9, and no real alternative choices besides operating. Could not spare nerves on one side, but I’m told they spared 90% on the other. Removed 9 lymph nodes, and the usual surrounding tissue…

So after 3+ months, still working on getting bladder under control, down to one man-pull-up a day, still leaking when standing, still uncomfortable and self conscious being out of the house for more than a few hours, ED is very depressing on so many levels.

I do remind myself that life before the operation was not great with daily and nightly urinary struggles.

On the positive side, no pain, blood work shows no signs of PSA, lymph node areas are no longer swollen, and hopefully I’ll be back to enduro motorcycle riding this spring…

Next blood test is February and my fingers are crossed. 🤞

I’m a 56 year old husband, father of three, one grandchild, and despite the complications, I fully believe in modern medicine.

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Replies to "Sobering progress…. Robotic operation on September 30th 2025, after being diagnosed with Gleason score of 9,..."

@paulbwatertownct
They say give it a year after surgery to try to get your continence back. My problem started in 9 years after surgery And six years after radiation. I’m getting an AUS installed in April to stop leaking almost completely. It really does limit where you can go and for how long. Like you, I leak when standing up and even when sitting down, but not when laying down.

You could have an option of an AUS or ProACT As long as you’re not gonna have radiation.

There are multiple Solutions to ED. You should be using a penis pump to at least keep your penis exercised, It’s usually not successful for penetration. Taking Cialis daily is recommended by a lot of doctors speak to your doctor, it can keep the blood flowing. You can get an implant, which would allow you to get an erection on demand, People are really pleased with the results of doing this. Injections like bimix or Trimix Work really well for most people and allow you to have an erection when you want it. One guy on this forum had both an AUS and an implant done and is really pleased with having both.

@paulbwatertownct Don't forget the good stuff.

- You're alive
- You made if through a pretty brutal surgery
- You have grandkids to enjoy. Better than me. My 2 girls have totally failed on that point.
- You're younger than many of us, so the future looks brighter than many