@kevtan
Hi, It sounds like you have had it pretty rough
Why do you have to pay for your own tests? Do you have insurance? Where are you in the country? Most testing should be covered by most insurance plans if a doctor orders them.
I hear you that it is hard to find doctors to listen, you may have to go thru several, but don't stop trying. It is a bit of a living hell and draining in so many ways. I recently connected with a naturopathic doctor here in the northeast, he is very knowledgeable about LC and mast cell activation, histamine and food sensitivities and looks at all your labwork and medical records as well. Im encouraged but we’ll have to see if there’s any relief. It’s strange that in the beginning I thought I’d be over it like a flu and back to normal and now for me three years later, I’d be happy if could stave off any more damage. My immune system was heavily disrupted and diagnosed with Sjogren’s disease and likely another autoimmune disease not found yet, though many symptoms. I also have microvascular and endothelial dysfunction damaging the lining of blood vessels and causing edema to occur, there are virtually no doctors locally that treat it, and I ended up having to find a resource on my own
I just wish I had found other resources sooner as western medicine is really leaves you hanging. And you’re right in terms of governmental things, there is no support even with resources of who to reach out to never mind financial and it is quite a financial burden
It almost seems like you have to be so sick and in ICU on a ventilator as in the early pandemic to get care. It’s very sad to watch your own body being ravaged and not have consistent resources for care or anyone leading the way
After all the extreme things that we had to do during the pandemic and now can’t get anybody to budge to help now
Keep looking for answers and don’t stop
And rest when you can to help cellular healing