@songinmyheart54: That sounds frustrating. It's commendable you're being a health advocate for yourself. Perhaps it would help to write down your primary concerns before your pulmonology appointment along with a symptom log of what and when issues ocuur - such as what activities you're doing or when your oxygen saturation declines or causes you to become out of breath, along with what helps/worsens and if you have an accompanying print-out of these results. You can prepare a list of questions such as can they please advise how to best coordinate care so an explanation might be determined for your reported occurences as you feel it's affecting your quality of life.

Your question list can be geared accordingly to the treating provider. For example, when you see the cardiologist, keep a list of those activities you're doing when you feel your heart rate increases significantly. You may inquire of your oncologist the reason for keeping you on Keytruda indefinitely and provide the symptoms you've been experiencing along with results of any testing you may have had and updated lab reports from the other providers. Be sure all the medical providers with whom you are treating have a full list of the medications you're taking on a daily and and as needed basis. Also, be prepared to take notes on what the providers tell you at the office visits as it can be overwhelming at times and some important information may be forgotten or overlooked. Inquire if there is a patient portal or print out summary of the visit you can access for future reference. This can be very helpful when dealing with multiple providers and/or when multiple conditions are being treated.

Can you circle back after your pulmonololgy visit to let me know if this information was useful, or how the visit goes?