The cycle of scans, waiting, scans, waiting can be a difficult one. I'm on a 3 month cycle too. I generally think that I handle it well, but after a scan I do feel the relief. So, I know I'm not entirely honest with myself about how I'm feeling during the lead up to scan day too. The people around us, just want us to be ok so it's not always easy to talk about how we're feeling. It's normal to feel isolated. We're alone with the heaviness of our thoughts. I try to work through the feelings, and don't allow myself to sit in that place for too long. Talking with someone can be helpful.
You may want to reach out to your care team, a social worker or palliative care member, they may be able to help in finding ways for you to work with the waves of depression.
Hiya Lisa - just an update
Had a full body pet scan in sept which shows the right lung SBRT from dec has left nothing but scar tissues! Cancer hasn’t traveled anywhere else. Feeling blessed. They have changed my meds from Xanax to clonazapam and renewed the oxy as I recover from shoulder surgery and fractured ribs due to a recent fall. Anyway I’m doing pretty well.
Hiya Lisa - just an update
Had a full body pet scan in sept which shows the right lung SBRT from dec has left nothing but scar tissues! Cancer hasn’t traveled anywhere else. Feeling blessed. They have changed my meds from Xanax to clonazapam and renewed the oxy as I recover from shoulder surgery and fractured ribs due to a recent fall. Anyway I’m doing pretty well.
Hello @dave56pa!, Ouch!, that fall sounds rough. Your goal should be to stay out of waiting rooms. Stay safe!
It's great to share in your good news of clear scans. Will you remain on a scan surveillance schedule? Every three months, or longer? My next round is in a couple of weeks.
Follow up appointment in 6 mos which I’m pleased has been extended from the every 3 month check ups. I’ll enjoy the break from all the radiation testing for now
I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
Hi Char09 - I had SBRT at Mayo twice. Nearly nine years ago they treated two nodules and then two years later treated another nodule. All three remained stable until this point when we're now watching another form. The treatment worked well, I did have side effects. A small percentage of cases get pneumonitis, an inflammation of the lungs. Treatment with prednisone over time relieved the inflammation. I have been blessed with nine years because of SBRT.
I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
I had 3 day treatment for 2 nodules RUL Aug 2023. * weeks later I had increased shortness of breath - pneumonitis from radiation - I was put on 2 months of Prednizone starting 40mg and decreasing down to 10mg.
CT scan will provide information on result. In my case it was clouded due to scarring.
I had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
Stage one lung cancer: Spouse went to Surgeon today He said it was the size of a bean..SBRT was suggested instead of surgery..He could do surgery or this SBRT? Has anyone had this procedure? Thank you
Stage one lung cancer: Spouse went to Surgeon today He said it was the size of a bean..SBRT was suggested instead of surgery..He could do surgery or this SBRT? Has anyone had this procedure? Thank you
@mmcorpora, welcome. I'm so glad that your spouse's cancer was found at an early stage when the tumor is small and your have treatment options.
I moved your question about stereotactic body radiation therapy (SBRT) to this existing discussion:
- SBRT (radiation) for lung cancer: What's your experience?https://connect.mayoclinic.org/discussion/sbrt/
I did this so you can connect with other members like @char09@tumanic@vic83@dave56pa and others who can share more about SBRT.
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Hiya Lisa - just an update
Had a full body pet scan in sept which shows the right lung SBRT from dec has left nothing but scar tissues! Cancer hasn’t traveled anywhere else. Feeling blessed. They have changed my meds from Xanax to clonazapam and renewed the oxy as I recover from shoulder surgery and fractured ribs due to a recent fall. Anyway I’m doing pretty well.
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3 ReactionsHello @dave56pa!, Ouch!, that fall sounds rough. Your goal should be to stay out of waiting rooms. Stay safe!
It's great to share in your good news of clear scans. Will you remain on a scan surveillance schedule? Every three months, or longer? My next round is in a couple of weeks.
Follow up appointment in 6 mos which I’m pleased has been extended from the every 3 month check ups. I’ll enjoy the break from all the radiation testing for now
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Like -
Helpful -
Hug
2 ReactionsI had SBRT radiation 5 day treatment on a malignant adenocarcinoma in my left lung in July. My first CT scan to show results is Oct. 28th. Has anyone else had this treatment? Can you please share any results? I know everyone is different but I need to know of others experiences. Thank You.
Hi Char09 - I had SBRT at Mayo twice. Nearly nine years ago they treated two nodules and then two years later treated another nodule. All three remained stable until this point when we're now watching another form. The treatment worked well, I did have side effects. A small percentage of cases get pneumonitis, an inflammation of the lungs. Treatment with prednisone over time relieved the inflammation. I have been blessed with nine years because of SBRT.
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Helpful -
Hug
2 ReactionsThank you for sharing. I have so few people to talk with about my questions. I appreciate your response and pray that you have many more years.
I had 3 day treatment for 2 nodules RUL Aug 2023. * weeks later I had increased shortness of breath - pneumonitis from radiation - I was put on 2 months of Prednizone starting 40mg and decreasing down to 10mg.
CT scan will provide information on result. In my case it was clouded due to scarring.
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Helpful -
Hug
1 ReactionHi @char09, Any new treatment can be intimidating. What questions do you have? Have you seen this other discussion? It may be helpful:
- https://connect.mayoclinic.org/discussion/had-sbrt-at-mayo-rochester-in-june-for-early-non-small-cell-lung-cance/
Also, @dave56pa and @tomm1951 have recently mentioned SBRT.
For others: SBRT = Stereotactic body radiotherapy
https://www.mayoclinic.org/tests-procedures/sbrt/pyc-20446794
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1 ReactionStage one lung cancer: Spouse went to Surgeon today He said it was the size of a bean..SBRT was suggested instead of surgery..He could do surgery or this SBRT? Has anyone had this procedure? Thank you
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Hug
1 Reaction@mmcorpora, welcome. I'm so glad that your spouse's cancer was found at an early stage when the tumor is small and your have treatment options.
I moved your question about stereotactic body radiation therapy (SBRT) to this existing discussion:
- SBRT (radiation) for lung cancer: What's your experience?https://connect.mayoclinic.org/discussion/sbrt/
I did this so you can connect with other members like @char09 @tumanic @vic83 @dave56pa and others who can share more about SBRT.
How was your partner's cancer discovered?
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