@vicmar
Hi Vicki! I'm glad I came across this site. I've been told LPL/Waldenstroms is fairly uncommon, so it's good to get feedback from other people. Sounds like you have rounded the curve, so to speak. So happy for you! Yes, it is freaky to go from living a healthy lifestyle and then find out something incurable is lurking in your body. But I'm hopeful. I have very high IgM (over 3500), which I think accounts for the crazy neuropathy and cramping I get. If I can get over that, I'd be forever grateful. I've been seeing Dr. Gahvari at UW. He's been super great, very comfortable to work with. The medical jargon I've been reading can be very difficult to understand. I hope your follow-up was promising. All the best!