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Can PMR be induced by Exercise
Polymyalgia Rheumatica (PMR) | Last Active: Jan 17 9:53am | Replies (100)Comment receiving replies
I'm at about 5 weeks into P.MR. I had to self diagnosed, cause my Doctor said I didn't have pmr even though I had all the symptoms. Fortunately, I had some prednisone left from a previous prescription that I did not use. So I started treating myself starting at 15 mg which miraculously stopped all my symptoms. I initially wanted to get off the prednisone. And did not do my research enough. And I was reducing very quickly, which caused me to flare so i went back upto 10 mg. And now reducing down more slowly..... But I too also was using collagen every day and sometimes twice a day. I had a funny feeling about this collagen being a possible cause of my PMR. It was very difficult to find a rheumatologist, but I finally was able to get one. And he said that if I had not started on my own, like I did, it would have spread down to my hips.
Replies to "I'm at about 5 weeks into P.MR. I had to self diagnosed, cause my Doctor said..."
@ds1 similar to me, I commented below.
@ds1 I exercise excessively I have my whole life and I am now 81 years old. Here is my story:
I was about 43 when I was diagnosed with PMR, which was 38 years ago and have been on and off prednisone, mostly on. I had classic symptoms. Pain in my shoulder girdle and hip girdle for no reason and fatigue. 10 mg of prednisone was a wonder drug. Within 6 hours of taking 10 mg I was a new man no pain. The problem was after tapering to zero about a year later the pain returned. Went through the cycle again. No pain for about a year then the pain again. This went on for years the the time between pain was getting less. Went on 2.5 mg prednisone and was without pain for about 4 years. Then the pain returned. Stayed on 2.5 for a while then went to 5 mg per day. During this time, about 30 years, I saw 4 different rheumatologists. The fifth rheumatologist thought I didn't have PMR due to my early diagnosis. He tried hydrochloroquine, but I had bad dreams, then he tried sulfa.... and it didn't help. Then Kevzara and had no problem reducing prednisone from 15 mg to 2.5 mg. When I went to 2mg had slight pain and when I went to 1 mg had lots of pain. Back to 2.5 mg prednisone and Kevzara. After being on prednisone for 38 years I am in the dark as to all the side effects. I do not notice any but thin skin. I bleed easily with only the slightest abrasion. I have had many bone density scans and they are all normal probably due to all the exercise I get. I have exercised excessively my whole life. My rheumatologist wanted to put me on Flosamax (sp) but I declined. I am 81 years old and still exercising excessively.
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@ds1 I'm certain my sudden onset PMR - which was later diagnosed as connective tissue disease - was caused by the expensive hydrolysed marine collagen I started taking five days before symptoms started. Hydrolysed collagen is structurally altered collagen. It makes sense to me that some of us react to altered collagen. Our bodies attack the alien collagen, then broaden that attack to include our own similar collagen, as happens in PMR and connective tissue disease.