← Return to 6 months of unexplained twitches throughout body, high WBC

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Profile picture for dwpucci56 @dwpucci56

Hello, Dystonia is such a complex and confusing disease. I have experienced some of the things you have. I started having tremors this year (dystonia 11-12 years), After a severe asthma attack I had a “Dystonia storm” and my giant cell arteritis flared, since then my tremors were not stoping and making life difficult. We went to a specialist who put me on Carbidopa-levadopa, Botox in neck, arms and leg. The carbidopa-levadopa seems to have lessened the tremors quite a bit, maybe you can ask your health care provider if it could help you. I also have one arm and hand that have pins and needles especially at night. You are not alone, this is a real neurological disease not simply anxiety or as one Dr Told me many years ago it was psychogenic! Now they have so much more information.I was also told it is somewhat common in people with autoimmune diseases. I don’t know if have offered any help but please know you are not alone and there is no one cure but we keep pressing forward and hopping, we are all in this together. Blessings

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Replies to "Hello, Dystonia is such a complex and confusing disease. I have experienced some of the things..."

@dwpucci56, welcome. Have you been diagnosed with Parkinson's disease?