@jameshoch
My husband was first diagnosed with a carcinoid tumor in 1995. They removed the tumor with 1/3 of his colon as well. At that time, there wasn't much information and no medications available. 28 years later, he was rediagnosed with tumors throughout his skull and body - Stage 4. He has been on Lanriotide for 3 years. The tumors are stable and have not gone into the organs. He had his last scans in August and his oncologist put him on 6 months scans instead of 3 months. Recently he had a serious AFib incident which has caused him to be tired and weak at times. However, it is hard to know if his cancer is causing some of that. He continues to exercise an hour a day, riding a bike and doing 100 pushups. We feel that at 82 years old, he is doing great. He works hard at keeping a positive attitude which is sometimes difficult but really helps!! Good luck on this journey! There are ups and downs but doing your best to stay healthy helps!!