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← Return to Neuropathy and Waldström
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@co64 Hi Sue! Thanks for reaching out. I am done with treatment, feeling great. Im so glad chemo is done! I am 71, and prior to my LPL and Cryoglobulinemia Type 1, I thought I was pretty healthy. Then my “idiopathic neuropathy” went wild.
I’m glad your bloodwork identified a problem. I was also worried about Multiple Myeloma after my bone marrow. It’s freaky to transition from healthy to having a blood cancer that can’t be cured. But, so thankful for treatment options!
I had follow up bloodwork yesterday. My IgM, had been up to 1200, is now at 270, normal range! My Cryoglobulinemia test gets sent to Rochester Mayo, so have to wait a couple of weeks for that. They both measure the bad antibodies that sludged up the small veins.
Yes, UW! Dr.Brunner. Who do you see? He’s great; at Eastpark Clinic location. I see him today for my first follow up.
Good luck with your medication.
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@vicmar
Hi Vicki! I'm glad I came across this site. I've been told LPL/Waldenstroms is fairly uncommon, so it's good to get feedback from other people. Sounds like you have rounded the curve, so to speak. So happy for you! Yes, it is freaky to go from living a healthy lifestyle and then find out something incurable is lurking in your body. But I'm hopeful. I have very high IgM (over 3500), which I think accounts for the crazy neuropathy and cramping I get. If I can get over that, I'd be forever grateful. I've been seeing Dr. Gahvari at UW. He's been super great, very comfortable to work with. The medical jargon I've been reading can be very difficult to understand. I hope your follow-up was promising. All the best!