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Profile picture for abinoone @abinoone

@jeffmarc why are you so aggressively defensive? I simply advised the gentleman to listen to his medical team rather than laymen, as I'm sure any qualified professional would do.

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Replies to "@jeffmarc why are you so aggressively defensive? I simply advised the gentleman to listen to his..."

@abinoone I agree with jeffmarc. No reason for the comment.

@abinoone
One reason is that ASCO is not a group of laymen.

You are new here so you don’t know about what has been going on with people around the country when they get poor treatment. We see it frequently in this forum. People whose doctors have not followed the standards of care and apparently don’t know what the standards are. So following your medical team can be a mistake if you are not informed about what the standards of care are.

I not only participate in this forum, but I go to nine online advanced prostate cancer meetings every month. I hear stories all the time from people that have not been given the minimum required treatment, and as a result, have aggressive prostate cancer.

It’s fine to listen to your medical team, but it is better to find out what the required treatment is so that when you speak to your medical team, you are informed and can ask for what should be the standard of care.

A good example of this is oncologists. There are medical oncologist, whose treat all different types of cancer, but aren’t experts on prostate cancer. Then there are Genito Urinary Oncologists, Who specialize in prostate cancer and know all of the standards and the new things going on because that is their specialty. I frequently hear about people who are going to medical oncologist, but aren’t being treated correctly.

We see this happening frequently when people are given Lupron without First having Biclutamide For a couple of weeks. Then they get a testosterone flare that increases their PSA and makes their cancer worse for a little while, and maybe longer.. This is another one of those things that happens frequently, but if the people come here, they can be informed ahead of time. For some reason, not all doctors are aware of this simple requirement.