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Polymyalgia Rheumatica (PMR) | Last Active: 5 hours ago | Replies (23)
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Replies to "I was 54 when I diagnosed myself with PMR. I say this because, when I first..."
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@e441300
I had exactly the same experience, doctor could not believe I had PMR 9 years ago because I was only 49, and CPR wasn’t sky high. I had a lot of stress and was also perimenopausal. Took 15mg of prednisone, symptoms gone.
Now after 10 years PMR hit me again and this time luckily it was diagnosed on a PET scan.
I experience like you that the severe back pain I had before PMR is now gone with the prednisone, unfortunately I realize it will come back when tapering down.
I think doctors should learn they have to listen more to their patients because we know best what is happening with our bodies. Not always follow what is written in the medical data.