@ageeth
Hello! Actually I'm Sue (CO64). I've seen comments from Vicki also since we are dealing with similar issues. I looked up different therapies, and what you're being treated with has very positive comments, other than the nausea. Is there something they are giving you for that? I will be treated with Zanubrutinib, which is a BTK inhibitor that's supposed to stop abnormal B-cell development in lymphomas and leukemias. That's my scientific definition. I've been doing a bit more reading about it and I'm hoping the side effects aren't awful. I'm otherwise healthy -- no meds or health issues at age 66. My MGUS was discovered in routine bloodwork, as I understand that's commonly how it is found cuz many people have it and there are no symptoms. It can lead to multiple myeloma (scary) but in my case it's Waldenstroms lymphoma (lymphoplasmacytic lymphoma); they're interchangeable. I also live in Wisconsin (I think Vicki had mentioned she does too), and I also go to UW-Madison for my care . Hi Vicki! Curious as to who she is working with. All the best with your journey. It sounds like it's rough right now for you.