← Return to Just diagnosed: Surgery not an option, looking for hope

Discussion
Comment receiving replies
Profile picture for vcsongradi @vcsongradi

@amybethowen Hi, Amy. Gosh there are so many of us in this same boat. I'm still considered stable, still getting infusions every 2 weeks with chemo ball for 46 hours, and the only side effect is neuropathy (worse in both feet, much better in my hands). How are you feeling? Tell me what's happening with you.

Jump to this post


Replies to "@amybethowen Hi, Amy. Gosh there are so many of us in this same boat. I'm still..."

@vcsongradi

I have no feeling in my fingertips. My feet are pretty much numb. I drop things often. I'm starting Lonsurf next week. I'm also getting a PET scan because I fear it has spread to more areas. Mostly my head and neck because they hurt so much. I'm on disability now and I am tired often. I have been starting to exercise and do stretches.

@vcsongradi what is your infusion and ball Where do u go for treatment