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What does the future look like for a stage 4 NET patient?
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (37)Comment receiving replies
Good morning, I was diagnoses with Stage 4 NET's in December 2022 primary in small intestines and metastasized to the Liver. I go to the gym on the average of 4-5 days a week. I get injections every 28 days since February 2023 Started with Lanreotide, then switched to Ocreotide after a few months. Had Lutathera treatment in 2025 and currently still showing the tumors decreasing. So after 3 years to summarize I am still going to the gym, I work outside in my garden, I get tired a little faster than I used to (but that can be age also!) And the tumors are smaller than they were 3 years ago.. I wish you the best on your nextstep..
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I want to ask a question about the exercising. I was an avid runner and I was busy four of the 5 days exercising. They did discover a brain tumor in June of last year and since then I have not been able to run or go to the gym. I still have a balance issue not all the time but I know it's there. I feel like if I don't run or get my steps in I'm a failure. I don't lay around by any means but it's not safe for me to go to the gym. Any other thoughts?