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MAC Abscessus, What Big 3 or 4 or 5 antibiotics are people taking?
MAC & Bronchiectasis | Last Active: Jan 7 4:22pm | Replies (34)Comment receiving replies
I've had only 1 meeting with my pulmonologist. She was waiting 6 months to see how fast it was growing. My big nodule is now 6mm. That's when she starts to get concerned. I see her next week.
I have a dry cough. No sputum at all. I have to have a bronchoscopy and lungs flushed to get a sample. I'm not on any treatment now. We'll see what next week brings.
Did you spend a week at NJH for an evaluation?
I'm just starting this journey.
I hope your Dec count is low and you're free of this soon.
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@djwork1 Thank you. I'm keeping my fingers crossed. I was diagnosed in Nov 2024 and my PHX Pulmonologist got me started on nebulizing 2/day with 7% saline. I am very grateful to him for that. I believe I cleared it for 5-6 months due to my nebulizing. There have been limited studies on the effectiveness. I read one study that showed 25% had culture conversion for nodular infection (not including cavity disease) without antibiotics. I went to NJH in May 2025 and was there for 8 days over the course of 2 weeks. I'm so glad I went to NJH!!! My NJH ID doctor was very insistent that I continue nebulizing with 7% (not 3%). Nebulizing and Airway clearance will help you cough up sputum, so possibly you could avoid future bronchoscopies. I used to be the same was, just a dry cough but nebulizing has changed that. The Portland Clinic has just wrapped up a nebulizing study (with 7%) with a larger sample population of those with BE and NTM, not sure when it will be published but hopefully soon. You might want to message or discuss with your local doctor. Kathy