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MAC Abscessus, What Big 3 or 4 or 5 antibiotics are people taking?
MAC & Bronchiectasis | Last Active: Jan 7 4:22pm | Replies (34)Comment receiving replies
@kathyjjb
Kathy, where are you located? I'm in Phoenix and going to Dr. Iusum at the Banner Lung Inst.
I have Mycobacterium Abscessus. We think I got it from running a humidifier in the bedroom at night using RO water. I've now turned my water heater to high. Water is coming out at 150 degrees. I'm hoping to kill any bacteria in it since this is in our water supply in Phoenix.
NJH is supposed to be the best in the country. I wish you well and hope you can find a drug therapy that knocks it out quickly for you. Best of luck to you.
Replies to "@kathyjjb Kathy, where are you located? I'm in Phoenix and going to Dr. Iusum at the..."
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@djwork1 I'm in Scottsdale. Are you on Antibiotics? Or, is your doctor waiting and watching? Are you nebulizing with 7% saline? I was only on antibiotics 3 weeks when I went to NJH and my NJH ID doctor told me my count was so low, that they would never have started the drug treatment. I send all my sputum samples to NJH, since they do counts on every culture. From May to October all my cultures were negative, and then November's culture came back positive again for MABC. Ugh. I'm still waiting on the count. Still feeling good-but I'm nebulizing 2/day.