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I empathize with your concerns following your diagnosis with GCA. I was confirmed with GCA in mid-October, and immediately put on 50 mg of prednisone daily. It probably started a few weeks previously. ( I had developed PMR symptoms over the summer, but ignored them until mid-September. ) I also responded very quickly to the prednisone, and the symptoms rapidly, or gradually, were gone. I am currently on 15 mg daily, have been since the beginning of November, and hoping to soon reduce again.
I have had one virtual visit with a rheumatologist. He appears to be a man of few words, so I did not get much of an idea what to expect in the future. This is the great puzzle for me, as I do not know, when I seem to be experiencing symptoms, if they are part of the PMR/GCA package, or a result of the prednisone, or just me aging. For example, I have developed slight shaking of my hands, which I do not remember experiencing before. I am wondering if this is something others have also experienced as part of the PMR/GCA/prednisone journey? There seem to be more questions than answers when dealing with PMR/GCA.

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Replies to "I empathize with your concerns following your diagnosis with GCA. I was confirmed with GCA in..."

@lally I was diagnosed with PMR and possible GCA in July 2024. Started on 60 mg. of prednisone. I didn't start tapering until early September 2024. In October, I had had tremors both at rest and when I was eating. In the past, I would have an occasional hand tremor, but they weren't common. I have a family history of parkinson's and essential tremors (both parents). The tremors after I started taking Prednisone were more often. Even, when I tapered to 0 mg. at the beginning of November 2025, I would still have occasional tremors. Not as frequent, as when I was on Prednisone. I had a slew of side effects while taking Prednisone. I figured the tremors were just another one.

@lally
Get yourself a rheumatologist that will see you in person (and examine you) it took me 6 months and I’m a health care provider. You also need to see an ophthalmologist. If you train on prednisone, yo need a Dexascan.

@lally
BTW I am a provider .
A virtual visit does not replace a thorough examination by a rheumatologist who cares about their patients.