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Profile picture for buckokey @buckokey

Hooray for you! As patients we tend to lean into our physician ‘s advice as gospel but I totally agree with you! I e had a rather large lump in left breast over two years. Was told “nothing to worry about “ over a year. Then went to ob-gyn for endometriosis (found when I had MRI for pneumonia) she examined my breast and the immediate reaction was very telling. After further tests was told “it’s ILC” and went through several months of tests and biopsies then told I would need mastectomy. I was failed in so many ways by the medical team I could have sued and won I’m certain. But I decided to use my energy to fight the cancer instead. I had to travel 90 minutes each way to my surgery oncologist but was relieved when she offered the 6-9 months on letrozole then a lumpectomy. (I had lumpectomy on right breast more than 22 years before—which should have been considered from the get-go!) Now I’m 7 months on letrozole with lumpectomy scheduled for March—but oncologist now says if I need her to go back in to get the circumference needed per pathology report—it would probably mean a mastectomy. I am so upset as I had gone this route at her direction to prevent a mastectomy! Now the extreme tiredness from the medication and the thought of having to take it for 5-10 years following surgery is wearing me down. I turn 79 in a couple weeks and like others, am thinking just talent chances without taking anything g and live my best life for whatever time God allows. Wondering what others think about this…TIA and thanks for “listening”.

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Replies to "Hooray for you! As patients we tend to lean into our physician ‘s advice as gospel..."

@buckokey Hang in there! The Letrozole may in fact be shrinking the ILC tumor for lumpectomy surgery which is why it was recommended. HOWEVER mastectomy is often recommended for ILC because ILC is so diffuse and surgery gets clear margins.
I wanted a lumpectomy too, but finally accepted that I needed a mastectomy which showed positive pathology margins (not clear). Then chemo to kill whatever cancer cells were left, a second surgery to get negative margins (clear pathology) and radiation. Because the ILC was so sneaky, I'm very happy that it's out and did not have any reconstruction. Honestly, I am glad to have had a mastectomy as there's no residual ILC. Now I'm on Anastrozole to prevent a recurrence and I'm doing my best.
So to answer your question, the Letrozole may in fact be shrinking everything so that you CAN get the lumpectomy, but if you need a mastectomy, please accept that the most important thing is that it's so important to get it all out because your life is a blessing and you are a most important part of this world.

@buckokey

Everyone has to make their own choices.

You may or may not have any symptoms on Letrozole if you are lucky and do not carry the genes for AIMSS which cause joint pain and other symptoms on AI’s.