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Neuropathy and Waldström

Neuropathy | Last Active: 16 hours ago | Replies (25)

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@ffr
I'm sorry to hear about your mom's situation. My neuropathy just involves numbness in my feet, along with terrible cramping. No pain from pins/needles sensation. Hence, sleep is a huge issue due to pain from cramps at night. Interestingly, neuropathy can be a side effect of chemo, so since I already have neuropathy, I can only hope treatment helps reverse that problem. Other than that and having joint aches, along with high IgM in my blood, occasional night sweats, I had no other symptoms. Until the bone marrow biopsy.

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Replies to "@ffr I'm sorry to hear about your mom's situation. My neuropathy just involves numbness in my..."

@co64 I recently finished chemo for LPL. I haven’t had cramps, but high IgM, numbness in feet and hands, and toes that had turned blue, purple with some blackness; prior to diagnosis and treatment. I recently started using magnesium lotion on my feet and toes before bed. It has helped with my new sensitive toes. My sleep has improved as well! I’ve read the lotion has helped with cramps; might be worth a try? Good luck to you! I also have Cryoglobulinemia Type 1; my numbers are dropping!! Have my first follow-up and blood work this week and next.