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@randallshields56
Thank you for your kind and caring words. It was very difficult at that time having to leave that job! I was working WAY too many hours and letting my own health go. I already had a Right Temporal amygdalohippocampectomy in 2019 and my seizures were getting worse along with my headaches.
Sadly, employers don’t understand and aren’t educated enough to understand what people with epilepsy may sometimes need to support them get their jobs done. So I am now Volunteering with the American Epilepsy Foundation to hopefully help make this possible.
Replies to "@randallshields56 Thank you for your kind and caring words. It was very difficult at that time..."
@tlkokke Thank you for volunteering. everywhere you turn people need support and guidance thank you for giving of your time.
That's a great way to put your wisdom to work and maybe help many others
that struggle every day too. I applaud you for your courage to make a
difference.
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@tlkokke
I found unexpected support from different people when they knew about the epilepsy. The RN in my church group who helped me wake up after a generalized seizure; the podiatrist who noticed my anti-seizure meds and wanted to talk about his daughter’s epilepsy; the phlebotomist who recommended a very successful change in my anti-seizure meds and the boss who tried to even out my work schedule. Even the nice EMT who said, “ But you don’t understand. It’s my JOB to take you to the hospital. “ When the seizure was over and I refused to go to the emergency room.
I know from personal experience that having seizures is difficult and affects one’s life in many ways, but I’ve been surprised at the goodwill exhibited by so many people.