← Return to Neuropathy and Waldström

Discussion
ageeth avatar

Neuropathy and Waldström

Neuropathy | Last Active: 16 hours ago | Replies (25)

Comment receiving replies
Profile picture for ffr @ffr

@co64
Decades ago my mother’s neuropathy was deemed to be caused by Waldenstom’s, which destroys the myelin of the nerves. I believe that she had one treatment of a chemo drug but had a reaction. Her limb neuropathy progressed, her gait and balance worsened, and she developed dementia. While she was in a nursing home, I read about a doctor who was doing research to see if the dementia was another effect of the disease, but we could not participate due to my mom’s extremely poor health. I’ve since learned that there can be a familial connection - my sibling was diagnosed with Waldenstom’s last year.

Jump to this post


Replies to "@co64 Decades ago my mother’s neuropathy was deemed to be caused by Waldenstom’s, which destroys the..."

@ffr
I'm sorry to hear about your mom's situation. My neuropathy just involves numbness in my feet, along with terrible cramping. No pain from pins/needles sensation. Hence, sleep is a huge issue due to pain from cramps at night. Interestingly, neuropathy can be a side effect of chemo, so since I already have neuropathy, I can only hope treatment helps reverse that problem. Other than that and having joint aches, along with high IgM in my blood, occasional night sweats, I had no other symptoms. Until the bone marrow biopsy.