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← Return to Brinsupri experience after 3+ months
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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 3 days ago | Replies (21)Comment receiving replies
Hi! I’m so glad so many of you are having a positive experience on Brinsupri. As for me I was having peeling skin and small callous like bumps within 3 weeks starting Brinsupri in late September. My doctor took me off Brinsupri in mid October until my skin cleared up and was considering putting me on a lower dose. Once off the medication all started to clear up slowly over time except for one callous, scaly bump half the size of a dime. I waited and thought it would go away. My pulmonologist at Mayo offered to refer me to see a dermatologist. A biopsy was taken and the result was squamous cell carcinoma. I am having mohs surgery next Monday. I am sharing this with all of you so that you watch your skin and get it checked if something doesn’t go away in a normal amount of time. Good luck to all of you who can tolerate this promising new drug.
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@lindabreathless hope your Mohs procedure goes well and you heal quickly.
It’s interesting to note that for adults over 60 especially fair-skinned with lifetime sun exposure, risk of skin cancers is already high. The American Academy of Dermatology estimates that 1 in 5 Americans develop skin cancer in their lifetime.
Being on 25 mg of Brinsupri is associated with a small increased risk of developing these skin cancers, which means fewer than 1 additional person per 100.
Just as I go for a dental cleanings twice a year, I go for skin checks twice a year. If something is detected and treated, the surveillance goes up to four times a year and then back down to twice a year if nothing is detected over that year.
I’m definitely keeping a closer eye on my skin these days! As stated above, I’m feeling better on Brinsupri and feels good to know I’m doing something that can potentially slow the progression of this serious lung disease. Time will tell!