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And the Academy Award goes to... Pretender

Caregivers: Dementia | Last Active: Feb 7 8:10am | Replies (54)

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@kartwk
I’m so sorry you are going through this too. It’s taken me 2 years to get a full diagnosis (vascular deterioration in the brain in areas affecting executive functioning). It’s still at the mild to moderate stage but my hubby has lost empathy and the ability to determine what someone else is feeling. He sometimes laughs when a family member gets sick or he gets angry when I express I am hurting. It’s hard not to take it personally.

The good thing about getting a diagnosis was it proved to me I wasn’t crazy and over reacting to everything. We started with a good neuro physiologist who diagnosed him with depression and then suggested a memory test. She diagnosed him with MCI. We then went on to see specialists at a Center for active aging and they recommended brain scans. This showed the vascular problem. I would definitely start keeping notes if you can. Like everyone else has said, it helps the doctors make a diagnosis and recommend proper testing. It can also help for you to look at your notes when you think you are imagining things.

It is a lonely journey but I try to reach out to friends and I have a Counsellor whose shoulder I can cry on. I have 2 wonderful adult daughters but they are busy parents and I hate to lean on them too much at this stage. Please reach out if you have more questions or just need to talk. Big hugs.

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Replies to "@kartwk I’m so sorry you are going through this too. It’s taken me 2 years to..."

Thank you - that makes lots of sense. Sadly, I think our PCP just writes
this stuff with him off, you know, getting old. And I think that happens
with a lot of older folk.

On another issue I had that lack of telling you about things when my Mother
was in a nursing home. They would call my Dad and tell him she was
refusing to eat, but that was it. No one, not even her Doc. told Dad that
people do this when their body is starting to go. Not sure how to explain
that but I think you know what I mean. No one brought up hospice or end of
life or anything. They had my Dad fluttering around bringing her
strawberry shakes and trying to entice her to eat, which she would
eventually do until the next time.
The only person who brought it up to me was her heart doctor after she was
admitted to hospital. He took the time to explain to me that no matter
what any one did etc., her heart was worn out and not going to get any
better and recommended palliative care.

That was tough on Dad to see her in a hospital room but no medical
equipment around. It kind of freaked him out but I explained to him the
difference in what was happening and he approved. A nurse showed me, and I
showed Dad how to take a wet cloth, or piece of ice and moisten her lips.
You see, all this time she was not talking, opening her eyes, etc.