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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (309)Comment receiving replies
Thank you for starting this thread for those of us on BRINSUPRI 3+ months or more!
I started on October 1, 2025 and am into the 4th month. After just 1 week I was calling it the miracle drug. All the positive feedback I have read about on this site I have experienced as well. HOWEVER, at the 5 week mark I became aware of a couple of little red dots on my legs as well as dry patches on my skin. Since then I’ve developed extremely dry peeling skin as well as a horrible skin rash across my trunk. The red dots turn into painful itchy sores leaving me feeling as if my skin is crawling… I have read skin issues can be a side effect of BRINSUPRI, but nowhere can I find how long this may last (forever?), how to treat this condition (yes, I have tried everything including Benadryl, oatmeal baths, prescription lotions!). I am on the 25mg dosage and wonder if I should cut it in half, or temporarily stop BRINSUPRI altogether… Has anyone else experienced these issues? If so, how have you managed them?
Replies to "Thank you for starting this thread for those of us on BRINSUPRI 3+ months or more!..."
@luxembourg it would be hard to give up Brindsuprri if it was a big help at first but I suggest seeing a dermatologist as it could lead to something more serious.
@whitemarsh Hello besides your side effects, is it still a miracle drug as you say, and has your condiiton improved to date.
Please indicate on levels 1-10, before and now.
I too have red dots on arms and legs and skin is very thin if I just brush against something it wlll break and bleed also these areas when healing are rough and scaly not sure what they will look like when and if they heal completely taking a long time to heal
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@whitemarsh Hi. sorry to hear about your skin problems. I've not started on the medication yet but have has numerous squamous skin cancers--some requiring surgery so interested in all the posts. Have you discussed this reaction with your doctor? Also, are you on the lower dosage? Perhaps you could take a break off the Brinsupri and see if your skin conditions show improvement. Good luck.