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@shelleyr
IF anyone of our relatives or friends really want to understand us, I always encourage them to visit the free YouTube Channels of: 1) Gez Medinger (he is one of us and has a ton of information available) and 2) Broken Battery and 3) the Bateman Horne Center.
Many Doctors don't want to deal with us because there is nothing 'medically' available to help us.
As I've previously said, I'm 83 years of age and 5 years post covid. I manage my symptoms (it's a constant project) with a lot of supplements, (mostly amino acids) and twice-daily (non-physical) yoga nidra sessions with the help of another free YouTube channel of Ally Boothroyd.
Because of my age, I pay particularly attention to ingesting sufficient protein which also helps with energy.
If you need some information about supplements and amino acids, I recommend another free YouTube channel. Visit Dr. Paul Anderson.
If you are not certain you can pull up YouTube on your device, look for the red retangular block with a small white arrow inside of it. That is the application which will open the YouTube world.
Good luck to all.
My best,
Pam
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@mspaminreno I have "followed" the channels you mentioned on YT and will check those out later today. As for trying to get friends and relatives to understand what we are going through.....they just don't care! All have the attitude that, if it doesn't affect them, why take the time to understand it?
As for ingesting enough protein, I am already a committed ketovore....eating very low carb, high protein, moderate fat meals. I do this to try and lose some of the weight I've gained as a result of LC. I am one of the "rare" victims where instead of losing my appetite from LC ......I am actually hungry ALL the time! It seems the LC affects the hypothalamus gland....which affects the pituitary gland....which regulates the hunger hormones released in the body. My body doesn't know when its full and should stop eating!
It's just such a vicious cycle of trial and error to figure out how to live with this mess. I'm going to be a crazy scientist by the time I learn all there is to know! LOL
Blessings to you all. ❤