I’ve finished 14 weeks on Brinsupri. Though I’ve posted much of this elsewhere, I’ll post it here as well. My energy increased early on and continues to be good. Mild hemoptysis was frequent (every one to two months) for me and has disappeared. Pulmonary function tests improved- no CT yet. Sputum is reduced, thicker and harder to expel. It is less watery and more plug-like, but not worrisome in color.

For a bit of context, I was treated successfully for MAC in 2020-2021. Since then I’ve been on antibiotics about once a year and had just finished a round before starting brinsupri. I wonder if my success with brinsupri is related to the antibiotic.

I really haven’t had negative side effects to date. It is good to hear others’ experiences to be aware of what to watch for.