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Neuropathy and Waldström

Neuropathy | Last Active: 16 hours ago | Replies (25)

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@co64
Thanks for your reply.
I started with chemo immunotherapy 2 months ago. I find it very hard but hopefully the pain, numbness and coldness will get less.
What is MGUS?

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Replies to "@co64 Thanks for your reply. I started with chemo immunotherapy 2 months ago. I find it..."

@ageeth Hello Ageeth. I’ve been wondering how you are doing. Chemo is hard! Christmas time would have been chemo dates; felt amazing that I was done! I’m getting my energy back and escaped exposure to Influenza A. The coldness in my feet and hands is gone. I have some nerve damage in the balls of my feet. My dr explained that this will take longer to go away, and that some could remain. It doesn’t keep me from being active, or awake at night so I could live with it! I have follow-up next week, with bloodwork the week after. I’ll reach out to you to see how you are doing and hopefully be able to share continued good results!
Thinking of you!

@ageeth
MGUS is an acronym for monoclonal gammopathy of unknown significance, often a precursor to different blood cancers. It goes untreated and is just monitored through labs until patients develop varying symptoms. I had a bone marrow biopsy which solidified my diagnosis from MGUS to Waldenstroms. I'm getting nervous as to future treatment and side effects.