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@SusanEllen66 Hi There Sue...I was diagnosed with Systemic Mastocytosis 3 months ago... going for bone marrow biopsy on March 04,2026...my bones feel like they weigh 200 lbs...I'm down to 113 lbs. It's horrible!!! I am taking AYVAKIT, CROMOLYN,H1 H2. MONTELUKAST, VISTARIL AND 2 INHAILERS...YES, I HAVE ASTHMA 🙏❣️

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Replies to "@SusanEllen66 Hi There Sue...I was diagnosed with Systemic Mastocytosis 3 months ago... going for bone marrow..."

@theresa1952 and I've had biopsy's from Duodenum, esophagus, large and small intestines ( full of mast cells)and 24 hour urine, severe bloating...I don't want to leave my bedroom...I'm taking meds 3x a day, I also have to use xdemvy for derma mites in my eyes!!! looking forward to hearing from you! Theresa