← Return to Testosterone Replacement Therapy after 12months of Orgovyx and Radiati

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Profile picture for scottbeammeup @scottbeammeup

@ava11 My LH and FSH levels are as high as the lab can measure them, i.e. off the chart. My brain is doing all the proper signaling to start making T again but my body isn't listening. My urologist said it may be "testicular failure." This is something that was NEVER even mentioned as a possibility so I am quite angry about it. I was woefully kept in the dark about ADT side effects when I was in cancer panic mode and seeking treatment. Knowing what I know now, I would have skipped it and done radiation alone as I feel ADT has done me more harm than good. Even the name "hormone therapy" is benign sounding for what it actually is.

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@scottbeammeup
Dr Scholz says on You Tube video's that about 50% of older people never get their Testosterone back to their pre-treatment levels. I asked My Radiation oncologist at UCLA what if I don't take hormone therapy. He said my chances of cancer recurrence is 50%! ADT cuts it down by 50%.
He said ADT makes Radiation more effective.

@scottbeammeup

I am 83 and had 44 radiation treatments and 4 months of Lupron to handle a PSA=11.1 and Gleasons of 3 ea. 3+4 and 1 ea. 4+4 out of 12 samples. I had horrible side effects of soaking cold sweats 24 hours/day, severe headaches, frequent urination, brain fog, and joint/bone pain. My doctor stopped the Lupron but said he would never give a testosterone supplement. My treatments ended in July, and I still have about 50% of the severity of the side effects after 7 months. At one month and 4 months after radiation my PSA's were < 0.1 and my testosterones were 6.9 and 8.7. I wonder if I should have even had Lupron since one responder said that Mayo does not recommend any ADT if over 80 years old. Does anyone know if this is true? My urologist will not even talk about having a testosterone supplement to alleviate my painful side effects.