@mapleskoff thank you for your kind words.
I unfortunately have no one to help me with this diagnosis.its just me . I plan on writing every question down to bring with me when I see the Dr. Im in Virginia, a few hours from Virginia Tech university and close to major hospitals.
Im hoping this was caught early too. I had a UTI then a kidney stone and kept telling my Dr something still wasn't right and kept demanding a CT scan and ultrasound. She finally gave in and sent me for both tests and that's when it was found on Wednesday..
I hate when Drs don't believe patients when they say something is wrong . We know our bodies better then them.