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@kyrazpollet CFS is a part of Long COVID, at least in my experience with this damn virus. I am on Naltrexone and although studies suggest a low dose, I am on 50 mg. I am also a recovering alcoholic/addict of 8 years. Naltrexone and other medications help as they target the dopamine receptors in the brain and as an addict, my brain (and others with addiction in their history) benefit from the Naltrexone. I did not need it the first 5 years of being sober, but when I got LC in 2022, I felt awful physically and started becoming hopeless. No one had any answers and still there are not many answers, so it seems the doctors treat the symptoms. I know that Epstein Barr Virus plays a role in this as well as inflammation. This virus mimics so many other autoimmune diseases that it is difficult to treat I guess. I want to see if an antiviral will help, but now with no insurance, money is tight and I worry about side effects as well. There are many research studies that point to low dose naltrexone helping. I had to get it compounded when I first tried it back in 2023. Some people say it helps. I know that my dose helps me. I also take Gabapentin (neurontin), Vyvanse (for ADHD but it helps with some of the fatigue symptoms as well), turmeric, psyllium husks, vitamin B12 (a shot I give myself once a month) and I have had to cut out salt, sugar and enriched flour. I drink only water, except for having a cup of coffee each morning. I play games in the morning, usually puzzle games to help get my brain going. I know how frustrating the brain fog can be. It is like being "high" and it is my short term memory as well as a loss for a specific word sometimes. Thank you for sharing on here and hang in there, just for today.

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Replies to "@kyrazpollet CFS is a part of Long COVID, at least in my experience with this damn..."

@diverdown1 I’ve been on low dose Naltrexone for 10 years for pain related to ME/CFS, fibromyalgia, osteoarthritis, and severe Polyneuropathy. It helps with mood too. Pain wise, so far I haven’t needed any other pain medication aside from an occasional Alieve. My neurologist prescribed Gabapentin for the neuropathy but I never picked it up.

My ME/CFS started with an Epstein Barr virus infection (40 years ago). I have also tested positive for HHV6. But haven’t had Covid (yet). I was on antivirals (valcyclovir and famcyclovir) for about 3 years and they did nothing to help my CFS. They made me more tired and caused depression.

I do puzzles in the morning too to help with brain function. Pretty much addicted to computer scrabble.

Wishing you all the best.