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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 38 minutes ago | Replies (7597)

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Profile picture for heisenberg34 @heisenberg34

@laura1970 It's great that you had a doc who was willing to change the dosage so quickly. I will ask my guy, but he seems reluctant to do anything out of the ordinary. What are you doing for pain relief these days if you don't mind me asking? Thanks.

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Replies to "@laura1970 It's great that you had a doc who was willing to change the dosage so..."

@heisenberg34 I don’t get much pain relief. I developed arachnoiditis as a complication of the pump and had it removed. The thin lining around the spine becomes inflamed. This causes scarring and “clumping “of nerve roots. It is a progressive disease without much treatment. There is one treatment, involving placing calcium channel blockers into the CSF space. It doesn’t cure the disease, just helps with pain and requires another pump be placed. I’m not going to subject my spinal cord to the same instrumentation that caused the arachnoiditis in the first place. No way. The whole ordeal made me skeptical of the has field of pain management and I refuse to see another one.

Thus I am on low dose narcotics that do not help my pain. I’m fortunate, in a sense. I don’t have constant pain. Only when I sit for more that 10-20 minutes, which has led to more isolation as sitting is required for so many activities.