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What is CFS? I have a Doc appt soon. If I ask the doc to put me on Naltrexone, because I’m in so much pain with Arthritis, but seems to have increased with LONG COVID.

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Replies to "What is CFS? I have a Doc appt soon. If I ask the doc to put..."

@kyrazpollet
CFS = Chronic Fatigue Syndrome also known in the U.K. and Canada, etc. as ME or Myalgic Encephalomyelitis.
It has much in common with LC as it typically follows the lifting of an acute viral infection, and presents with a variety of symptoms (not necessarily just fatigue), lasting many months or even years.

@kyrazpollet CFS is a part of Long COVID, at least in my experience with this damn virus. I am on Naltrexone and although studies suggest a low dose, I am on 50 mg. I am also a recovering alcoholic/addict of 8 years. Naltrexone and other medications help as they target the dopamine receptors in the brain and as an addict, my brain (and others with addiction in their history) benefit from the Naltrexone. I did not need it the first 5 years of being sober, but when I got LC in 2022, I felt awful physically and started becoming hopeless. No one had any answers and still there are not many answers, so it seems the doctors treat the symptoms. I know that Epstein Barr Virus plays a role in this as well as inflammation. This virus mimics so many other autoimmune diseases that it is difficult to treat I guess. I want to see if an antiviral will help, but now with no insurance, money is tight and I worry about side effects as well. There are many research studies that point to low dose naltrexone helping. I had to get it compounded when I first tried it back in 2023. Some people say it helps. I know that my dose helps me. I also take Gabapentin (neurontin), Vyvanse (for ADHD but it helps with some of the fatigue symptoms as well), turmeric, psyllium husks, vitamin B12 (a shot I give myself once a month) and I have had to cut out salt, sugar and enriched flour. I drink only water, except for having a cup of coffee each morning. I play games in the morning, usually puzzle games to help get my brain going. I know how frustrating the brain fog can be. It is like being "high" and it is my short term memory as well as a loss for a specific word sometimes. Thank you for sharing on here and hang in there, just for today.