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Bronchiectasis and azithromycin 3 times a week.
MAC & Bronchiectasis | Last Active: 2 days ago | Replies (20)Comment receiving replies
@kathyjjb
Just wondering if you have tried the new drug Brinsupri that is supposed to reduce Bronchiectasis flares ? I would be interested to know what your NJH doc thinks about the lower dose Azithromycin and resistance.
Replies to "@kathyjjb Just wondering if you have tried the new drug Brinsupri that is supposed to reduce..."
@cwal I read the side effects of brinsupri and thought I wasn’t ready for anything like this yet. Also curious, does anyone find albuterol inhaler (I use during flares) helpful? Is anyone using daily Advair inhaler? So hard figuring out what each of our own individual needs are.
I started Brinsupri on 9/21 and will be stopping. It has not helped me. Neither has Ohtuvavre or Dupixent.
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@cwal Unfortunately, I have a Medicare advantage health plan and it does not cover Brinsupri. I was misled by my insurance broker and now it's too later to change to the original Medicare plus a gap-at least according to my new health insurance broker. I also cannot get Nuzyra (can't afford the $30,000/month), despite the fact that it shows to be highly effective on MABC.
I will post it when I learn more. I did recently read that Erythromycin is the recommended macrolide for BE inflammation, and it does not cause resistance to MAC, not sure about MABC.